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Workshop epilepsy community & emergency seizure management

Watch the full video via YouTube

https://drive.google.com/file/d/1U_itQOf-XVLMnfALhi705xJzsNCTo25y/view

Presentation with results only.

Hosts: Jos Bongers - Veterinary Neurologist (Seizure Clinic)

Pauline Sinclair - Former Carer of an Epileptic Dog

Samantha Lindley - Veterinary Behavioural Consultant


Participants: International group of pet owners and carers (from the UK, Australia, Canada, and others)

Session Context and Purpose

  • A community-based workshop focused on supporting carers of pets with epilepsy.

  • Main themes: emergency seizure management, shared experiences, and peer support.

  • Aimed to build understanding, reduce anxiety, and improve confidence in handling seizures at home.

Key Discussion Themes

Emotional Impact and Shared Experiences

  • Many participants described the stress, fear, and emotional toll of seeing their pets seize.

  • Several found reassurance in hearing that others face the same challenges (“Glad to hear others are having the same experiences”).

  • Emotional relief came from shared humour and empathy — e.g., funny anecdotes during recovery phases helped normalise their reactions.

Seizure Management Strategies

  • Owners discussed practical seizure management steps:

    • Staying calm and removing other pets from the room.

    • Keeping the environment dark and quiet during recovery.

    • Filming seizures for veterinary review.

Medical & Emergency Care

  • Discussion of rescue medication (rectal diazepam):

    • How to administer safely (“approach from the back, not front; remove cap first”).

  • Mention of alternative management strategies:

    • Vagus nerve stimulation techniques.

    • MCT oil and ketogenic diet options (Purina NeuroCare, keto feeding).

    • Questions about flea/tick medication triggers, hormonal effects, and nutritional factors.

Behavioural Changes & Recovery Patterns

  • Participants described post-seizure hunger and confusion as common:

    • “Obsessed with food,” “incredibly hungry after a seizure.”

  • Other postictal behaviours:

    • Disorientation, compulsive checking of rooms, or unusual attachment behaviour.

  • Some owners expressed difficulty managing reactive or anxious behaviour between seizures.

Peer Support & Emotional Benefits

  • Many attendees emphasised the value of community connection:

    • Reduced feelings of isolation (“don’t feel alone anymore”).

    • Emotional reassurance and validation.

    • Desire for ongoing meetings or specific future topics (e.g., epilepsy and hormones, spaying impacts).

Participant Feedback

  • Overwhelmingly positive:

    • “Very informative and reassuring.”

    • “Extremely helpful and don’t feel alone.”

  • Participants expressed gratitude for practical guidance and emotional connection.

Key Takeaways

  • Education + peer interaction greatly enhances carers’ confidence and emotional resilience.

  • Shared lived experience normalises stress responses and encourages consistent management.

  • Owners seek more guidance on diet, medication side effects, and hormonal influences.

  • The session strengthened the sense of community and shared understanding among participants.

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30 July

Recent Advancements in Diagnosis and Treatment